Managing Mobility Challenges With Duchenne Muscular Dystrophy


Exercise, including sports, helps to maintain strength in DMD and keep the heart as healthy as possible.

“When prescribing exercise for patients with DMD, the goal is to preserve function, prevent joint contractures, and support quality of life without accelerating muscle damage,” says Ashley Katzenback, DPT, the owner of Cape Concierge Physical Therapy in Massachusetts. “There are a few key precautions to keep in mind when planning — no eccentric strengthening or prolonged walking down hill, and no high intensity exercises.”

Dr. Katzenback says aquatic therapy and daily stretching are the gold standard for exercise in patients with DMD. “Water supports body weight, allows for a full range of motion and reduces eccentric load on tendons,” she says. “Contracture development is common in the wrist, hip, and ankle joints, so daily stretching is essential.”

Adaptive sports are modified versions of sports designed for people with disabilities, including those who use a wheelchair.

 “Adaptive recreation programs exist in many communities and can be a great way to stay active, maintain cardiovascular conditioning, and stay socially engaged, says Dr. Dasgupta. “Patients can try activities like wheelchair basketball, adaptive cycling, swimming, or handcycling, depending on their abilities and interests.”



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